Meet Anthony, our encouragement and influence.
Welcome to The Anthony DeMartino Foundation website. Our foundation is a non-profit, 501c(3) organization committed to raising funds for Muscular Dystrophy research and also supports programs that assist children living with Muscular Dystrophy. Our constant motivation and the core of our work is Anthony DeMartino.Anthony had Duchenne’s Muscular Dystrophy, which is one of the most common and most severe forms of this disease. Despite his diagnosis, Anthony never let any obstacle stand in his way. In 2006, Anthony graduated from Tottenville High School with high honors. He was your typical teenager that loved to watch the NY Mets and Jets, play Smackdown on his Playstation, and spend time with his family and friends. He was an avid reader and writer of poetry, and had a great talent for drawing. What’s most special about Anthony was his unique way of captivating you with his bright smile, intelligence, and amazing strength. He is a true symbol of courage and perseverance to those that were close to him.
Thanks to the outstanding contributions of our supporters, Anthony’s Run continues to be a success! We would like to extend an enormous THANK YOU
to all of our participants, contributors, and volunteers who have helped us raise over $50,000 to date. As a result of the overwhelming support, we were able to raise substantial funding for the Muscular Dystrophy Association and research into Duschenne’s Muscular Dystrophy. Fundraising has also allowed us to help several wonderful and brave young boys and girls in the Staten Island area.
We realize there are many worthy charities to contribute to, and we sincerely thank you for choosing to support ours. Let’s work together to continue to build awareness of this life threatening disease and make a difference in the lives of children living with Muscular Dystrophy.
About Muscular Dystrophy
Muscular Dystrophy, or MD, is a genetic disease that degenerates and weakens the muscles of the body over a period of time. Since MD is hereditary, it is usually diagnosed during childhood, but some forms of the disease are found to develop later on in adulthood. There are several forms of MD but all have the common characteristics of impaired muscle development, a lack of proteins to support healthy muscle, and a decrease in aerobic and motor functions.
Duchenne’s Muscular Dystrophy, or DMD, is one of the most common forms of MD and only affects males. It is primarily characterized by the inability to produce the muscle protein, dystrophin. DMD is an inherited disorder that affects roughly 1 in every 3500 males born worldwide. It is passed through a mutation in the X chromosome from the mother to son. The disease is usually diagnosed as early as infancy or can be found up to the age of 5 or 6 when symptoms become more prevalent.
Boys with DMD, usually have delayed progress in crawling and walking and will start to experience a decrease in muscle strength from age 5 to their pre-teen years. Usually by the age of 12 or 13, boys will become wheelchair dependent as deformities in bone development occur, especially in the spine. During their teen years, these muscle and bone tissues lead to advanced complications in the ability to breath. Another problem that will develop by their late teens is Cardiomyopathy, or an enlarged heart, and deterioration of the heart’s ability to function properly.
Currently, the lifespan of a boy with DMD is mid to late 20’s and has a 100% fatality rate. There is no cure for DMD, however, there are several treatments available to manage the symptoms through steroids, physical therapy, surgeries, and assistive devices.